This website is dedicated to our daughter Aisling O'Regan whose battle with Cystic Fibrosis ended on Friday 23 December 2011
Aisling (pronounced Ash-Ling) means vision or inspirational dream.
We hope this website enkindles friends, family or indeed people who have never met Aisling (or her family) with vision and imagination.
May Aisling inspire you to:
- Sing or Dance
- Write a Poem, Novel or Blog
- Register as an Organ Donor
- Delight in encouraging Talented Youngsters
Keep singing and dancing Aisling
(Mum and Dad xx)
The Aisling Charitable Trust has been created in memory of Aisling Ursula O'Regan who passed away on Friday 23 December 2011 (aged 20)
We feel that Aisling would not have wanted us to focus funds on Cystic Fibrosis itself but on something positive for the young and old.
Donations are gratefully accepted and to be used for various projects to encourage young talent and older people.
Depending on funds raised current plans include:
- a Song Writing Workshop for young people (at St Edmunds College)
- encouraging young musical talent
- a Memorial Bench for walkers to rest at St Johns' Pelham (with the kind permission of Maj. Ted Barclay)
(click the button below)
Cystic Fibrosis is a disease inherited by a group of faulty genes.
In the UK and Ireland 1 in 25 people carry the Cystic Fibrosis (CF) gene
When both parents are carriers of the faulty gene, there is a 1 in 4 chance of having a baby affected with CF.
The faulty genes vary in every person with CF, so some treatments that work for one may not work at all for another. It alters the salt/water balance in the body, making all the mucus in the body extra sticky. This means it is really hard to get rid of colds/flus/chest infections. One common way to alleviate symptoms is to perform percussive physiotherapy on the chest area to encourage infected sputum to be coughed up.
CF also affects the pancreas so little or no enzymes reach the stomach to digest food. People with CF usually need to swallow a substitute enzyme (called CREON) in the form of capsules to help the food digest.
The lungs slowly get more and more infected and they start to scar. Gradually, the lung function is reduced and that's when people need to get on the lung transplant list.
To date there is no cure for Cystic Fibrosis.
To find out more, please visit:
Aisling O'Regan (1991-2011)
Furneux Pelham, United Kingdom
Battling with Cystic Fibrosis and hoping for a double lung transplant